Nearly half way through September and there is a lot going on. Change of weather, children going back to school and starting a new academic year. This means my child needing more support due to learning difficulties.
Working in retail Christmas is fast approaching and the demand for additional help from staff is always a priority without an incentive.
I am hoping it is not a harsh winter and we make it through another winter.
The changes I am experiencing right now mostly come down to finance.
My child going back to school can be a costly time of year.
School friends birthday parties and presents can not be avoided.
UC appointments every month build up anxiety i feel i am having to think about putting my youngest child into day care. This will be an extra cost not only in care but in transport.
Preparing my home for winter so i can preserve as much heat as possible, for example buying a hot water tank cover, thicker curtains and warmer clothing.
"long term sick" is something I'm seeing a lot of in media, especially since labour took over, "getting the long term sick back into work". Cos they don't want to admit they're picking on the vulnerable and disabled. Better to say long term sick than admit they're targeting the disabled.
And focusing on encouraging us back to work, the problem isn't with us, it's with employers not willing to make the accommodations needed to get into work, it's that for many work makes us more sick, especially those of us with chronic disabilities like fibromyalgia and chronic fatigue, just getting out of bed and moving around my ground floor flat is exhausting, let alone finding a way to get to a workplace, navigate the workplace, finding the energy for dealing with people who don't understand what it's like to have a hidden disability and then get fired for being off sick too often, like it's something we wake up and consciously choose to live with. "Oh I know what'll be fun, how's about living in never ending pain and dizzying fatigue each and every day, that'll be a hoot" FFS. No wonder suicide rates are on the continual rise, gov would probably wish us dead then at least they wouldn't have to pay to keep us alive anymore. And so much of these chronic illnesses are made worse by long NHS wait times and GPs pig headedness to rush through appointments and not listen to patients, so by the time we do finally get help it's not enough and we're left medically playing catch up with disabilities many GPs don't have training on.
Stop punishment of the disabled for being disabled, for some of us we wouldn't be so unwell if it weren't for the lack of medical and financial support needed to help us physically function better.
It’s so difficult as they are unexpected and spontaneous. When they come out of the blue it’s hard to find the financial resources for them. My biggest out of the blue costs are always school related. Recently my daughter was given 2 GCSE Music trips to go to. None of them are subsidised due to budget cuts. I literally had to ask family for help on one and cut down on necessities to make the other one work. Terrible but true
Reading a lot about millionaires and billionaires and offshore bank accounts to avoid paying tax
What do they need so much money for?
Inequality can't be denied anymore.
With every new school year there is change. This year my youngest child has reached a more independent age, he is now able to travel back and forth from school unaccompanied. This is a pivotal year for us both and makes me think of the passage of time. Next year I will be forced to work more hours or face punishment by the DWP. I have accepted my UC commitments and am therefore bound by them and at the last face to face meeting I was warned, although I do make the threshold of required hours.
Deep joy! It's Saturday night & instead of relaxing & enjoying myself, I find myself having to appeal my son's PIP Mandatory Reconsideration. Yes, dear reader, they said no - he has only been awarded 10 points instead of the 12 he was awarded last time. He has been very aggrieved at the injustice of it all & is worried that his independence being curtailed by the DWP means he will have to rely on me more. He is worried that I will become more ill has a result, bless him.
Not only that - once I've submitted that, I have to start my claim for Universal Credit - the dreaded migration notice has arrived. I can't bear to look at it right now - especially whilst my son's appeal is outstanding. It states I have to claim by Halloween - all I see is toil & trouble ahead at the moment. So sick of not having the security we need to flourish. And even though Labour is now in power, I don't feel confident that disabled people like me will be sufficiently supported.
I am furious with the labour government for adding vat on private school fees.
My son is lucky enough to have two family members pay for his private education. However they have had to sacrifice holidays, luxury items, clothes food you name it so that he can have the best education possible because as we know the state schools are horrendous and chaotic and over filled.
They were just on the cusp of financially being able to keep him in his school but since the Vat added he will have to leave his school next year.
Sadly my son has lost two family members to suicide in the last two years so not only will this be another trauma for him, but he will also lose his friendship circle too!!
With the VAT increase added this has doubled his bill by £900 a month. As a result of this he will have to leave his education next year along with several of his other friends in his year group as they are facing the same financial difficulties due to the vat being added.
The government has not thought this through there will be an influx of children leaving private school and trying to get places in already oversubscribed state schools so the council are going to have a massive job on their hands in the springtime.
I’m hoping that once the bill is passed it can be overturned and labour will stop discriminating against children that have a slightly better off income than other children. You should not penalise children and this will only make private schools for the elite.
I've been asked to be the Treasurer for a newly formed charity, and have accepted the position.
I've been asked to set up the bank account for the organisation and to also be in charge of any money that the charity makes and bank it too.
I am feeling a little nervous about the role because I have never done it before, but excited too because I'll be doing something positive for the community.
I just watched Nanda speak on Channel 5 news about Free School Meals. Heart breaking to see how the impact of these cuts will affect families with young children.
Still very stressed about migration to Universal Credit.
Tried my best to explain it to my teenage daughter with autism.
She says she is now stressed. She says it's not fair and won't discuss anymore. I have nobody to reassure me we will be ok.
I would like the chancellor to prioritise all on a low income, including families, pensioners and those on benefits. We can only hope there will be no further cuts to benefits. Life is tough enough for us and we have shouldered the burden from the last government. Whether they will listen is another matter. So far the situation is looking all too familiar. I expect another form of austerity will be imposed. We will have to see.